1Dr. Hamidullah, 2Ali Raza, 3Mohib Ali, 4Mobeen Ali, 5Umar Khan, 6Hadi Raza
1Peads Medicine, Khalifa Gulnawaz Teaching Hospital Bannu KPK
2PIMS
3PIMS
4PIMS
5PIMS
6PIMS
Abstract
Aim: The main purpose of our current investigation was to elucidate encounters come across by parents who have offspring affected by chronic kidney disease.
Methods: Our research entailed a comprehensive examination and meta-synthesis of investigations employing in-depth interviews or focus groups, aiming to delve into the encounters encountered by parents having children suffering from chronic kidney disease in various stages. Researchers thoroughly explored five electronic databases, namely Medline, Embase, PsycINFO, Cumulative Index to Nursing and Allied Health Literature, and Sociological Abstract, up until May 2021, alongside reviewing the reference lists of pertinent articles.
Results: Our analysis encompassed a total of eighteen articles that documented the encounters recounted by parents caring for 405 children afflicted by chronic kidney disease. Through this examination, we identified eleven distinct themes, which we subsequently classified into four interconnected clusters. These clusters encompassed intrapersonal factors, such as coping with persistent uncertainty, stress, and the need for unwavering vigilance despite enduring fatigue. The interpersonal cluster involved aspects such as the medicalization of parental roles, reliance on and conflicts with healthcare professionals, and disruptions in peer relationships. Additionally, we explored external issues, which encompassed the management of medical regimens, the pursuit of information, logistical considerations such as transportation and accommodation, financial challenges, adhering to liquid and dietary restrictions, and striking a balance between medical care and domestic responsibilities.
Conclusion: Apart from the typical responsibilities of parenting, the role of a parent with a child suffering from chronic kidney disease necessitates the acquisition of exceptional skills in healthcare provision, problem-solving, information retrieval, and financial management. These obligations emerge exactly when one’s ability to deal is weakened by physical tiredness, uncertainty, and the dissolution of support networks both inside and beyond the family unit. It is crucial for parents of children having chronic kidney disease to receive comprehensive care from a multidisciplinary team, as this approach has the potential to enhance results for their offspring.
Keywords: Chronic Kidney Disease, Offspring, Renal replacement therapy.